Merinoff Symposium 2013: Parkinson's


The 2013 Merinoff Symposium highlights the opportunities and obstacles to enhancing care and expanding access to care for Parkinson’s disease patients through the employment of telemedicine.


Each agenda item includes speakers and panelists from a variety of constituencies including, but not limited to: researchers, neurologists/movement disorder specialists, allied care providers, healthcare administrators, patients, philanthropists, policy makers, and more. 


Transportation will be provided between the Garden City Hotel, the Feinstein Institute for Medical Research, and the Cradle of Aviation.



6:00 – 8:30 p.m.              Dinner – Garden City Hotel

   Keynote Speakers: Colonel (Retired) Karl E. Friedl, Ph.D.

   Dr. Jeremy Boal, M.D. – Sr. Vice President and Chief Medical Officer, North Shore-LIJ Health System



8:30 – 9:00 a.m.       Opening Address - Merinoff 2013: Message of Hope

All people with Parkinson’s disease should have access to the latest therapies and the best care; this care can be delivered to them by taking advantage of new ideas and existing technologies that will break the barriers to delivering expert care to patients everywhere.

Kevin Tracey, M.D.  – Director and Chief Executive, Feinstein Institute for Medical Research


9:00 – 10:20 a.m.     This panel will compare and contrast the experiences, successes, and challenges of current telemedicine leaders across various

health care systems. What was the impetus behind their system’s adoption of telemedicine and how has that affected their management of population health?  How have/will they utilized telemedicine in the care of Parkinson’s patients in particular?

Moderator: Colonel (Retired) Karl E. Friedl, Ph.D.


Edward Brown, M.D. – Chief Executive Officer, Ontario Telemedicine Network (OTN)

Jayne Wilkinson, M.D. – Associate Clinical Director, Parkinson’s Disease Research, Education and Clinical Center (PADRECC), Philadelphia VA Medical Center

Stewart Ferguson, Ph.D. – Director, Alaska Federal Health Care Access Network (AFHCAN)

Jana Katz-Bell – Associate Dean, Interprofessional Programs, UC Davis School of Medicine & Betty Irene Moore School

of Nursing


10:20 – 10:30 a.m.    Coffee Break


10:30 – 11:50 a.m.    The Neurologist/Movement Disorder Specialist as a strategist – remote management for scale to reduce the number of encounters

per specialist and increase the number of patients.  Can telemedicine reach patients that doctors don’t; Can we expand the reach by educating and training allied care specialists?

Moderator: Pete Schmidt, Ph.D. – Chief Information Officer, Vice President, Programs, National Parkinson Foundation


Ray Dorsey, M.D. – Associate Professor of Neurology, Director, The Johns Hopkins Parkinson’s Disease and Movement

Disorder Center

John Duda, M.D. – Co-Director, Parkinson’s Disease Research, Education and Clinical Center (PADRECC), Philadelphia VA Medical Center

David Eidelberg, M.D. – Head, Susan & Leonard Feinstein Center for Neuroscience, Vice Chairman for Experimental Medicine, Department of Medicine, North Shore-LIJ Health System


12:00 – 1:20 p.m.        Lunch   Patient Panel: What excites you about the future of telemedicine? How can telemedicine improve your life and the

management of your disease?  What types of caregiver interactions through telemedicine would benefit you?  What types of care are you not willing to get through telemedicine?

Moderator: Robin Elliott – Executive Director, Parkinson’s Disease Foundation


Steven DeMello – Director of Health Care, Center for Information Technology Research in the Interest of Society (CITRIS), University of California, Berkeley

Dennis Leebel  Leebel  - Caregiver, Leader of a Delaware Parkinson Support Group, Vice-Chairman of the Delmarva
Parkinson Alliance

Jay Phillips – Parkinson’s Research Advocate

Marilyn Phillips – Parkinson’s Research Advocate


1:30 – 2:50 p.m.        Understanding Telemedicine: what is being done in other disease states and how can those lessons be applied to Parkinson’s disease

and other chronic conditions?

Moderator: Jon Linkous – Chief Executive Officer, American Telemedicine Association


Bart Demaerschalk, M.D., M.S.C., F.R.C.P (C) – Professor of Neurology, Director, Telestroke Program, Mayo Clinic

Heidi Maloni, Ph.D., A.N.P. –B.C. – National Clinical Nursing Director, Veterans Affairs Medical Center

Lee H. Schwamm, M.D. – Vice Chairman, Department of Neurology, Director, TeleStroke & Acute Stroke Services, Massachusetts General Hospital


2:50 – 3:10 p.m.        Coffee Break


3:10 – 4:30 p.m.      Economic Drivers: How does the delivery of Parkinson’s disease management through telemedicine economically benefit patients,

providers and insurers? What are the motivators and deterrents from the wider adoption of telemedicine in chronic disease care and clinical trials?  What is the overall market for telemedicine in chronic disease care and management?

Moderator: Jon Linkous – Chief Executive Officer, American Telemedicine Association

Speaker: Jonathan Shankman, M.B.A., M.P.H. – Vice President of Analytics, AMC Health



4:30 – 6:00 p.m.         Free time at Garden City Hotel


7:00 p.m.                 Dinner – Cradle of Aviation

Speakers – Mr. Dennis Leebel and Dr. Ingrid Pretzer-Aboff



8:30 – 9:00 a.m.       Opening Remarks


9:00 – 9:20 a.m.       Efficacy: Telemedicine delivers commensurate results to in-person care for certain aspects of Parkinson’s disease care.  This panel

will discuss what types of care are currently being delivered through telemedicine, what services could be offered in the future and the importance of demonstrating results in addition to cost effectiveness.

Moderator: Matt Stern, M.D. – Parker Family Professor of Neurology, University of Pennsylvania Health Systems


Kevin Biglan, M.D., M.P.H. - Department of Neurology, University of Rochester Medical Center

Mark Guttman, M.D., FRCPC – Director, Centre for Movement Disorders

Caroline Tanner, M.D., Ph.D. – Director, Clinical Research, Parkinson’s Institute

Jayne Wilkinson, M.D. – Associate Clinical Director, Parkinson’s Disease Research, Education and Clinical Center

(PADRECC), Philadelphia VA Medical Center


10:20 – 10:40 a.m.    Coffee Break


10:40 – 12:00 p.m.    Examine telemedicine’s current/potential role in clinical trial recruitment, longitudinal studies, clinical follow-up and providing

follow-up to closed clinical trials.  Discuss the ramifications of accessing larger populations for studies.

Moderator: Todd Sherer, Ph.D. – Chief Executive Officer, The Michael J. Fox Foundation


Andy Feigin, M.D. – Director, Experimental Therapeutics Unit, Susan and Leonard Feinstein for Neurosciences

Tomasz Sablinski, M.D., Ph.D. - CEO, Transparency Life Sciences

Caroline Tanner, M.D., Ph.D. – Director, Clinical Research, Parkinson’s Institute


12:00 – 1:00 p.m.      Lunch – Gerard Gallucci, M.D., M.H.S. – DSAMH Medical Director for the State of Delaware


1:00 – 2:40 p.m.    Legislative Update: Reimbursement and regulatory issues

Moderator: Amy Comstock Rick, J.D. – Chief Executive Officer, Parkinson’s Action Network


Gary Capistrant – Senior Director, Public Policy, American Telemedicine Association

Jonathan Jagoda – Director, Federal Policy and Government Relations, Federation of State Medical Boards

Joel White – Executive Director, Health IT Now Coalition


2:40 – 3:00 p.m.       Coffee Break


3:00 – 4:20 p.m.       How is telemedicine being used in Parkinson’s care today and where do we go from here?  Culmination of Learning - Call to Action

Moderator: Amy Comstock Rick, J.D. – Chief Executive Officer, Parkinson’s Action Network

Panelists: All Co-Hosts





© 2013 The Feinstein Instutute for Medical Research • All rights reserved

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